Long COVID-19 Resources

Research Studies (not exhaustive):

  1. Orthostatic Intolerance in Long-Haul COVID after SARS-CoV-2: A Case-Control Comparison with Post-EBV and Insidious-Onset Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients: https://www.mdpi.com/2227-9032/10/10/2058
  2. Long COVID symptoms and duration in SARS-CoV-2 positive children — a nationwide cohort study: https://link.springer.com/article/10.1007/s00431-021-04345-z?fbclid=IwAR1L5OBBjOZXtDHgS5stJ5WUuPDRZ_cB00gdfrpaeW3cokoAzdkR-urQess
  3. Children with long covid: https://www.sciencedirect.com/science/article/pii/S0262407921003031
  4. Long-Haul COVID Patients: Prevalence of POTS Are Reduced but Cerebral Blood Flow Abnormalities Remain Abnormal with Longer Disease Duration: https://www.mdpi.com/2227-9032/10/10/2105/htm
  5. Could tiny blood clots cause long COVID’s puzzling symptoms? https://www.nature.com/articles/d41586-022-02286-7
  6. Long COVID symptoms in SARS-CoV-2-positive adolescents and matched controls: https://www.sciencedirect.com/science/article/pii/S2352464222000049
  7. A distinct symptom pattern emerges for COVID-19 long-haul: a nationwide study: https://www.nature.com/articles/s41598-022-20214-7
  8. Effect of remdesivir post hospitalization for COVID-19 infection from the randomized SOLIDARITY Finland trial: https://www.nature.com/articles/s41467-022-33825-5
  9. Long-term cardiac pathology in individuals with mild initial COVID-19 illness: https://www.nature.com/articles/s41591-022-02000-0
  10. Long-term neurologic outcomes of COVID-19: https://www.nature.com/articles/s41591-022-02001-z
  11. Long-COVID post-viral chronic fatigue and affective symptoms are associated with oxidative damage, lowered antioxidant defenses and inflammation: a proof of concept and mechanism study: https://www.nature.com/articles/s41380-022-01836-9
  12. Could long COVID be linked to herpes viruses? Early data offer a hint: https://www.nature.com/articles/d41586-022-02296-5
  13. Vaccines only partially protect against Long COVID: https://www.nature.com/articles/s41577-022-00749-6
  14. Long COVID after breakthrough SARS-CoV-2 infection: https://www.nature.com/articles/s41591-022-01840-0
  15. Inflammation links mild COVID-19 with long-term cognitive impairment: https://www.nature.com/articles/s41582-022-00694-x
  16. Long COVID includes breathing and reproductive problems and has a range of risk factors: https://www.nature.com/articles/s41591-022-01954-5
  17. Coronapod: ‘viral ghosts’ support idea that SARS-CoV-2 reservoirs could be behind long COVID: https://www.nature.com/articles/d41586-022-01331-9
  18. Long-term cardiovascular outcomes of COVID-19: https://www.nature.com/articles/s41591-022-01689-3
  19. Lingering cardiac involvement in previously well people after mild COVID-19: https://www.nature.com/articles/s41591-022-02002-y
  20. Long COVID occurrence in COVID-19 survivors: https://www.nature.com/articles/s41598-022-10051-z
  21. Clinical predictors of recovery of COVID-19 associated-abnormal liver function test 2 months after hospital discharge: https://www.nature.com/articles/s41598-022-22741-9
  22. New symptoms and prevalence of postacute COVID-19 syndrome among nonhospitalized COVID-19 survivors: https://www.nature.com/articles/s41598-022-21289-y
  23. Long COVID: defining the role of rheumatology in care and research: https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(22)00266-1/fulltext

News Articles (not exhaustive):

  1. Long-COVID treatments: why the world is still waiting: https://www.nature.com/articles/d41586-022-02140-w
  2. A mild COVID infection changed my life. Why aren’t we warning others?: https://www.sfchronicle.com/opinion/openforum/article/mild-infection-long-covid-17523630.php
  3. New data shows long Covid is keeping as many as 4 million people out of work: https://www.brookings.edu/research/new-data-shows-long-covid-is-keeping-as-many-as-4-million-people-out-of-work/
  4. Should People Be More Worried About Long COVID? https://www.medscape.com/viewarticle/982506
  5. Behind the surge in workers with disabilities: long COVID: https://www.axios.com/2022/10/26/disabled-workers-long-covid-work-from-home
  6. Over 2,000 Guardian readers told us about their long Covid fight. Here are their stories: https://www.theguardian.com/society/2022/oct/25/long-covid-fight-guardian-readers
  7. ‘We are in trouble’: Study raises alarm about impacts of long covid: https://www.washingtonpost.com/health/2022/10/12/long-covid-study-scotland/
  8. The tragedy of long COVID: https://www.health.harvard.edu/blog/the-tragedy-of-the-post-covid-long-haulers-202010152479
  9. What Doctors Still Don’t Understand About Long COVID: https://www.theatlantic.com/ideas/archive/2022/10/long-post-covid-symptoms-mild-cases/670469/
  10. 4 out of 5 people with long COVID have trouble performing day-to-day activities: https://abcnews.go.com/Health/people-long-covid-trouble-performing-day-day-activities/story?id=91040703
  11. Addiction drug shows promise lifting long COVID brain fog, fatigue: https://www.reuters.com/business/healthcare-pharmaceuticals/addiction-drug-shows-promise-lifting-long-covid-brain-fog-fatigue-2022-10-18/
  12. What is long COVID and who’s at risk? This NIH project may find out: https://www.sciencenews.org/article/long-covid-risk-nih-recover-symptoms
  13. What We Know About Long Covid So Far: https://www.nytimes.com/2022/05/21/well/long-covid-symptoms-treatment.html

Labs to Request from your Doctor:

  1. An article specifying which tests you should request from your doctor: https://www.academia.edu/89416655/Labs_To_Pull
  2. A printable list of tests to request, compiled by a patient advocate: https://www.longcovidpatient.com/diagnostics
  3. A frustrated patient created this invaluable list of tests to request: https://docs.google.com/document/d/1i6q_zBs2xbBzsIDFDWRWDJ07FOAsRi3VctcrX8Zb_78/edit
  4. Hypercoagualabilty and clotting tests:

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